going home!

today IS THE DAY! we are taking our little girl home to be with her family. we are excited, with a little underlying hint of nervousness but mostly excited. We are just waiting a bit at the hospital. We need to make it to the house about the time the home health nurse does with the equipment so we have to plan our departure to correspond with that. Darla Jane just can't be off her continuous feeds for too long.
She is being sent home with an NJ feeding tube and will need to be on continuous feeds. So the home health nurse will bring a pump for that. We will also have a pulse-ox meter and oxygen, just in case. . .
She is also being sent with some daily medications...but not many.
Lasix to help her kidney function.
Aspirin to keep the blood from clotting around the sano shunt.
Zantac to control the acid in her stomach.
and Tylenol and Lortab for pain, as needed.

We will follow up with our pediatrition this week and the cardiolosist in about a week and a half. Which is also when they will redo her swallow study. We will see then how well she is doing to determine when the following appointment will be.