I realized it's been a while since I've updated on Darla Jane. Which for us we are going with the no news is good news idea. Darla Jane is becoming more and more independent. She is now up to 6 steps on her own!
And she is also eating a lot more food! She still is not a fan of anything little or crunchy, but if you give her a whole piece of pizza or a bowl of spaghetti she will down it. We are still working through her intolerance to milk. Darla Jane still is drinking the sensitive formula but we are hoping she will grow out of that.
We are still on oxygen at night...however we were able to go a few nights with no oxygen when we were visiting the Brewers in Oregon. I guess there is something to be said for living at (or near) sea level.
We have just been enjoying summer with the family. Oregon, Aspen Grove, camping, Lagoon and Heart Camp...we have to get as much fun in before we start our winter lock down.
We will have another cardiology appointment on the 7th of September which will include a sedated echo. Prayers for a good report.
