News. and boy is it!

We had a follow up with Dr. Mart last week.  He expressed concern that they were not able to find anything in the cath lab to "fix" to help with the low oxygen levels.  He assured me that he had asked specifically for Dr. Day to do the cath because if there were collaterals or anything else that could be done, he would find it. We then discussed that the only way to bring her levels up at this point is to go ahead with the Fontan.  

When Dr. Mart said  "I am going to present her next week at conference for an "early Fontan" (bold and italics added for emphasis) I just about fell off my seat.  I knew she was going to need it eventually. And I knew that low oxygen levels were an indication that it was getting close to time. BUT I didn't think at all that he would have said that NOW. 

He also discussed the possibility of also doing an aortic arch reconstruction if the stents in her heart weren't going to eventually be able to be stretched out to an adequate size.  

Not only did he spring the "early Fontan" on me, but he also said that he was going to recommend it for APRIL.  As in this month. 

Hello. Let me introduce you to the rug that was completely pulled out from under me. 

He said that he couldn't see any benefit  for her, in waiting.  He said her saturations would go down along with her energy level, weight gain and overall health.  That for her, now would really be the best time.  

I was able to talk to Dr. Johnson on the phone today.  He told me that Dr. Burch and Dr. Grey, the final voices in the decision on surgery weren't at the conference this morning so a scheduling form wasn't able to be turned in.  But  he was fairly confident that the surgery will be in the next two weeks!  I was just getting my hands around the month idea and now it was two weeks.  We won't know for sure the date until they are able to run Darla Jane's case by those two doctors but we should know a date by the end of this week.  

He also said they discussed her aortic arch and that they don't feel the need to do reconstruction on that right now.  whew!  One less worry on our plates.

Let the prayers commence.  Ready. GO!