And she is also eating a lot more food! She still is not a fan of anything little or crunchy, but if you give her a whole piece of pizza or a bowl of spaghetti she will down it. We are still working through her intolerance to milk. Darla Jane still is drinking the sensitive formula but we are hoping she will grow out of that.
We are still on oxygen at night...however we were able to go a few nights with no oxygen when we were visiting the Brewers in Oregon. I guess there is something to be said for living at (or near) sea level.
We have just been enjoying summer with the family. Oregon, Aspen Grove, camping, Lagoon and Heart Camp...we have to get as much fun in before we start our winter lock down.
We will have another cardiology appointment on the 7th of September which will include a sedated echo. Prayers for a good report.
So good to see your little miss at heart camp! She is a doll. I'm SO impressed she can scarf a piece of pizza! Take that cheerios! As I learned at Zeke's failed echo today, sedated is the only way to go! Love you guys!
ReplyDeleteHaha Jenn....It's because of 3 failed echos that we are finally going the sedated route. Gotta love those squirmy, crying stinkers!
DeleteHi Darla Jane,
ReplyDeleteMy name is Jenna. You are a brave courageous fighter. you are a special miracle from god, a gift from above, earthly angel,and you are a smilen hero. You are full of happiness, life, smiles, joy, fun,love, and spunk.
I was born with a rare life threatening disease, and have 14 other medical conditions, and developmental delays.
I wrote this poem
Each of us are Special
Each of us different,
No one is the same
Each of are us are unique in our own way,
Those of us who have challenges, we smile through our day.
Those who of us who have challenges, we smile through our day.
It doesn't matter what others say
we are special anyway.
What is forty feet and sings? the school chior
http://www.miraclechamp.webs.com