hi friends.we are doing pretty well. after getting home from the hospital Little miss's oxygen saturation actually went up. GO HER! we had a cardiology appointment last friday. the dr told us, "she looks as good as can be give her condition" . I guess I'll take that as a compliment. We were told that because her oxygen levels were so good we could work on weening her off the oxygen. well, since we've been home, we've tried. and to this point, little darla jane doesn't want to ditch it just yet. She'll be doing great, we turn down the oxygen and then she'll drop again. So, for now, we're still rocking the tube!
We also added a new, permanent, med to the list. Enalapril. This will help keep her blood pressure low, and help with her heart function. So that her right ventricle will work as well as it can, for as long as it can. We'll take that! We started on the very lowest dose and will work up as her body can handle it.
but at this thanksgiving time we truly have SO much to be thankful for.
I'm so glad that she's doing well! What dose of enalapril is she on? Elijah is on two kinds of bp meds, and he is on the maximum dose of both. I'm wondering what dose they give a miniature lady like Darla Jane. Do you have to watch her potassium output while she's on enalapril?
ReplyDeleteShe is such a cutie!! Give her smooches from us! xoxo
ReplyDeletechristy, we are starting her on the very lowest does of enalapril, it's just .4mL. We will meet with her dr. regularly to work on increasing it, they just have to take it slow and see how her body tollerates it.
ReplyDeleteand Cari...I will!
you go little lady!!!
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