Friday, July 1, 2011

darla jane wants to make sure we are still saying our prayers.

(this picture was taken from a trip to the hospital to rule out whooping cough)



So the low oxygen levels we were hoping were caused by the cold...are not. She does still have the cold. However, she also has increased pressure in her heart that is being cause essentially by the out growth of her shunt, with is causing the saturation to decrease.
Today I took her in for a cardiologist appointment. We saw Dr. Mart (who, side note, we haven't met with before but I LOVED him and will try to see him from now on). He was concerned about her low oxygen saturation for this long and decided that we go ahead with an echo today. We did. And discovered that there is an increased amount of pressure around her shunt. The normal is about 30 but he said they'd take anything in the 30-50 range...Darla Jane was around 130. This indicates that she is growing out of her shunt and is approaching the need to move onto the next surgery... We are not wanting that to be quite so soon. Little miss just turned 3 months yesterday and they like to wait to do the surgery between 4 and 6 months. SO we will be going back up to Primary Children's on Tuesday for a cardiac catherization. Then, they will go up through a main artery into her heart and try and stretch the area with a balloon to decrease the pressure. If that doesn't work a stent will be placed in to try and keep that area open. Best case scenario we get the procedure done, stay over night for observation and will be home again in the morning. Worst case, the procedure isn't successful...we stay at the hospital and will be lined up for stage two surgery within a couple of weeks. :-( not ready for that.
Which brings up the need to keep the prayers coming.


She has been gaining good weight though, and weighs 11 lb 14 oz....

4 comments:

  1. I love you. We are always praying for you and little Darla Jane. Always.

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  2. We will always pray for you. We love you. Grandma and Grandpa

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  3. Best of luck at the appointment, I hope they are able to hold off the surgery and let her keep growing. You are all in our thoughts and prayers. She looks so grown up with all that hair and her tiny little mask.

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  4. We will be there Wednesday for Eli's surgery. So, let's keep in contact. I want to know how she is doing. It's nice to see friendly faces.

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