post-op visit.

Darla Jane and I went up to primary children's today for her post op. visit. And you might be surprised about this, but she did great! The dr. said that she was looking good. Her oxygen saturation was even at 91. Because this is the critical time between now and when she has her second operation (the glenn) we will be meeting with either the cardiologist or our pediatrician at least every 2 weeks. So we set up an appointment with the cardiologist for 2 weeks from now.
The only thing that the dr. was concerned about was that she isn't gaining enough weight. Don't we all wish we had that problem. So, we have now bumped her feeds up to 20ccs an hour, from 17.
AND - she passed her swallow study so now we are working towards bottle feeding her. The NP switched her feeding tube to NG, where it now goes into her stomach. We will see how she tolerates that. Because she has never had milk in her stomach we need to slowly work up to it. We start on 24 hours of continues feed and after the first 24 hours we will switch to 2 hour bolus feeds, Where she gets 2 hours worth at once. If that is tolerated then the 24 hours after that will be 3 hour increments. Then...we can work on a bottle. Because it might tire her out, she could be bottle and tube for a little while until she can work up to 60 ccs or 2oz at a time every 3 hours. Step by step we'll climb the highest mountain... Go Darla Jane, Go!

The nurse had to look for the right tubing, so after the NJ tube came out I was able to snap a quick picture of Darla Jane completely tube free... Although she was mad and I couldn't get one without her binky.
the NP tried to place the tube in the other side of her nose this time to give the left side a break, but couldn't get it place. Poor little face... hopefully soon we will be able to take the tube out and her little cheek will be happier.